Avaliação do atendimento de saúde às crianças com Síndrome Congênita do Zika- SCZ (microcefalia) no Instituto Caviver, em Fortaleza - Ceará

Abstract

This research analyzes the implementation of public health policies aimed at the care of children with Congenital Zika Syndrome (CZS), with an emphasis on in-depth evaluation of the services provided, their weaknesses, and strengths. Using a qualitative approach, interviews were conducted with family members of children diagnosed with CZS and with healthcare professionals directly involved in their care in the city of Fortaleza (CE), Brazil. The study aimed to identify the main facilities and institutions responsible for care, understand the health demands from the families' perspectives, and examine the challenges faced by professionals in the implementation of public policies. The findings reveal that, nearly a decade after the Zika virus outbreak, inequalities in access to care persist, including a lack of intersectoral policies and a significant burden placed on mothers, who often carry out daily care responsibilities alone. Despite legislative advances, ensuring comprehensive and continuous care remains a challenge. The study concludes that CZS, as an expression of social health inequalities, requires ongoing state attention, sensitive listening, and policies that value the experiences and knowledge of families.