Eu me lembro, por nós dois: memória, vida e Alzheimer de Maria Rocidélia

Abstract

Alzheimer's is a neurodegenerative disorder that affects today approximately one million Brazilians. Still without a cure, the disease carries several stigmas about its origin, especially among patients and their families. The present work, organized in a virtual exhibition hosted on the website eumelembrotcc.wixsite.com/exposicao, aims to approach the condition, taking as reference the life story of Maria Rocidélia, a woman from the country of Ceará, who has been diagnosed with Alzheimer in 2010. This story, told through the exhibition, gathers photographs and interviews with her nine grown-up children, based on the Oral History method and partitioned into two works of art: “photo book of memories”, a collection of photographs of my grandmother who received digital interventions, and “spoken memory”, a video-documentary that gathers the interviews carried out with my uncles. The material also includes a report of the disease that briefly explains its history and has indications on who and where to look for treatment. The following report details the development process and the explanation behind this process, which seeks to immortalize the memory of Rocidélia, my grandmother.