Produção de vídeos educativos para orientação de responsáveis por pacientes acometidos por fissuras labiopalatinas

Abstract

The implications of cleft lip and palate go beyond aesthetics, extending to functional aspects and psychosocial problems. Among the most common dysfunctions are swallowing, chewing, hearing, breathing, dental arch and nasalized voice. In this context, caregivers do not feel prepared to care for cleft children and have many doubts about the pathology. Thus, the object of the study was to build educational videos related to the guidance and management of those responsible for patients with cleft lip and palate. At first, an integrative literature review was carried out, which was used to build the theoretical basis of the following stages of the research. In a second moment, a descriptive and analytical study with a quantitative approach was carried out, which was used to analyze the knowledge of those responsible for cleft lip and palate, assisted at the Center for Integrated Care for the Cleft at Hospital Infantil Albert Sabin, from March to July 2023. After approval by the Research Ethics Committee, the Informed Consent Form was applied and a questionnaire was filled out by those responsible for cleft children. Data were processed using the Epi Info program and p < 0.05 was adopted. 140 guardians of cleft children participated in the study. There was a statistically significant association between having schooling up to elementary school (p=0.01), having a partner (p=0.03), family income less than or equal to one minimum wage (p=0.01) , being a female guardian (p=0.04), having a longer follow-up time (p=0.0007), being responsible for an older child (p=0.004) and not having doubts about this pathology. On the other hand, there was a statistically significant relationship between living in the countryside (p=0.0009), being over 30 years old (p=0.005), being responsible for more than one pregnancy (p=0.03) and not knowing how to explain what a cleft lip and palate is. In a third moment, we proceeded with the elaboration of educational videos based on three stages: pre-production (synopsis or storyline, argument, script, storyboard), production and post-production. The MediBang software was used to create the illustrative images and the character design, the Flipa Clip software was used to animate the character and after recording the images, the edits were made using the DaVinci Resolve software. The study is still under development, the next step will be validation with the target audience and in future perspectives the elaboration of other videos with other approaches. In this way, it is expected that the videos will be able to clarify and guide the difficulties of those responsible for the patients, particularly regarding the understanding of cleft lip and palate and the importance of multidisciplinary follow-up, favoring the integral development of the cleft child, increasing adherence to treatment and favoring a better quality of life for children and caregivers.