Entre a dor “invisível” e o reconhecimento: vivências de mulheres diagnosticadas com fibromialgia no município de Sobral, Ceará

Abstract

Fibromyalgia is a chronic rheumatic condition characterized by widespread pain throughout the body, especially in tendons and joints. This syndrome has no well-defined cause, but it is believed to be related to heightened sensitivity in the diagnosed individual's nervous system, and that the onset of symptoms may occur after psychological or physical trauma. The literature also points to the existence of psychological symptoms that may be present in this diagnosis, such as sleep disturbances, intense mood swings, and high levels of anxiety and depression. Fibromyalgia primarily affects adult women, making it necessary to investigate how the diagnosis impacts gender issues, as well as aspects of daily life, relationships, and mental health. Therefore, this study is justified by the prevalence of women diagnosed in Brazil and by the literature that highlights the influence of chronic diseases, especially fibromyalgia, on the mental health of diagnosed women. Therefore, this study aimed to understand the experiences of women diagnosed with fibromyalgia and living in the city of Sobral, considering the illness process and the impacts of the diagnosis on mental health. An exploratory, qualitative study was conducted with women diagnosed with fibromyalgia for at least three months, over the age of eighteen, and living in Sobral, Ceará. Twelve women participated. Data collection was conducted through semi-structured interviews conducted online via the Google Meet platform. The research was publicized through the social media channels of the Psychology undergraduate program at the Federal University of Ceará, for those who wished to participate voluntarily, using the snowball method. Data analysis was performed using Content Analysis. Factors such as self-esteem, social support, and treatment conditions were found to significantly influence the participants' mental health. By carrying out this study, we hope to contribute to the creation and reflection of public policies aimed at patients with chronic diseases, specifically Fibromyalgia.