Mães soropositivas: enfoque educativo visando à melhor qualidade de vida

Abstract

We realized that HIV-positive mothers, amidst social stigmas and prejudices, face several difficulties. In order to better understand the reality of these mothers, we aimed to investigate the life trajectory of HIV-positive mothers, taking into account the difficulties they experience, to develop educational actions aimed at improving their quality of life. To better portray the reality of the facts and ensure the veracity of the information obtained, we opted for Ethnonursing, using the 0-P-R model, for the collection and analysis of data obtained through field notes, participant observation, and interviews conducted with 14 HIV-positive mothers who attended the Association of Volunteers of the São José Hospital and agreed to participate in the study, signing the Informed Consent Form, in accordance with the National Research Ethics Committee. Based on the findings, we identified the following cultural themes: difficulties, abandonment, unemployment, and revolt. We observed that fear, discrimination, poverty, abandonment, revolt, marital life, and concern for children were the main difficulties faced by the mothers. Amidst these difficulties, we realized that they can be strong, allies in the fight against AIDS and in the pursuit of education for a better quality of life.