Vulnerabilidades e tensões de famílias de crianças com Síndrome Congênita do Zika vírus

Abstract

Objective: to identify situations of vulnerability and accu-mulation of tensions in the care of the child with Congenital Zika Virus Syndrome. Methods: qualitative study, in which 40 mothers of children with Congenital Zika Virus Syndro-me participated. The research instruments used were a semi-structured interview, construction of genograms and ecomaps and field diary notes. The collected data were sub-mitted to content analysis in the thematic modality. Results:the main situations identified were caring alone for the child with Congenital Zika Virus Syndrome; conflicts with the par-tner or marital separation; family abandonment; absence or health problems with other children; and financial difficul-ties. Conclusion: vulnerabilities, family conflicts, and finan-cial difficulties were considered sources of family tension and stress when facing expenses with medications and tre-atments, revealing racial and socioeconomic disparities in the access to health care.