Preferências em unidades de diálise: percepções de cuidadores e pessoas com doença renal crônica em hemodiálise

Abstract

Brazil presents a significant number of patients with chronic renal disease and who undergo Hemodialysis as a priority treatment. Physical, social, financial and emotional changes that interfere significantly in the quality of life of patients, family members and caregivers can occur with the treatment. Based on research and experiences of the authors, cultural factors and life history were related to the preferences of patients and caregivers during the engagement process in the proposed treatment. The general objective of this research is to determine the preferences related to hemodialysis according to the perception of patients with CKD undergoing hemodialysis and their caregivers. The research was carried out in a quantitative way, with an individual approach of patients and caregivers through questionnaires and open question. The analysis of the quantitative data was performed initially from the rank rankings of the preferences, using the Kappa Test to analyze them. After analyzing the questionnaires, we identified that the preference items most valued by the patients were: nursing technicians, access to doctor sand life expectancy. Regarding the caregivers, the most valued preference items were: safety, nursing technicians and access to information. It was possible to identify that for the patient, hemodialysis is seen as annex tension of life until a new organ can be transplanted. The treatment of hemodialysis in reducing mortality and morbidity are not the only results that matter patients and caregivers. We understand that knowing their preferences can favor the planning o factions, in order to have a better result regarding the engagement and reception of the patient and their caregivers.